Webinar Program
Our 2025 webinar series presents speakers on a range of topics associated with Fragile X syndrome and the Fragile X premutation. Our webinars and Q&A sessions run live on Zoom. Many of the webinars are recorded, and these can be found on youtube, Spotify and Apple Podcast platforms.
The program for the first half of 2025 is varied, covering practical matters around supporting daily living for people living with Fragile X syndrome and planning for the future, and health aspects for women who are Fragile X premutation carriers. Presenters include GP Dr Jonathan Cohen, occupational therapist Bev Kadish, endocrinologist Dr Amanda Vincent, IVF specialist Dr Mark Livingstone, disability-specialist lawyer Margaret Duncan and psychologist Dr Marcia Braden.
UPCOMING WEBINARS are listed below. If a webinar is “live only”, this will be clearly noted. Additional webinars will be added to the program as the year progresses.
For recordings of recent webinars – on FXPOI, Medications and Fragile X syndrome, and an update on the Fragile X FMR1 Premutation – click here
Many thanks to the Qantas Side by Side grant program and to Genea for supporting the production of several of our webinars in 2025.
IVF AND PRE-IMPLANTATION GENETIC DIAGNOSIS (PGD) AND FRAGILE X
Dr Mark Livingstone
Genea
Tuesday 29th April, 7 – 8 pm AEST
Dr Mark Livingstone is the Medical Director at the Genea clinic, in the Sydney CBD.
Dr Livingstone specialises in genetic conditions requiring preimplantation genetic diagnosis (PGD) and couples requiring a second opinion who have had previous unsuccessful IVF cycles.
LIVE Q&A - SUPPORTING THE FRAGILE X LEARNING STYLE AT HOME AND IN THE CLASSROOM | ASK ME ANYTHING!
Dr Marcia Braden PhD
Licensed Psychologist
www.marciabraden.com
SUNDAY 4 May, 10-11am AEST
Dr Marcia Braden PhD is a licensed psychologist and former educator known internationally for her expertise in learning and behaviours in Fragile X syndrome. Marcia is a regular presenter for the FX Webinar series. In this LIVE Q&A Marcia aims to support parents, caregivers and educators by responding to your questions and sharing her experience in activating successful learning strategies for children with Fragile X syndrome. The focus will be on young children, aged from kindergarten class through to the end of primary school.
Sensory processing disorders and Fragile X syndrome
Bev Kadish
Write Start Occupational Therapy
Tuesday 20 May 2025, 8 – 9 pm AEDT
Bev Kadish is an Occupational Therapist with many years of experience in supporting children and adults with Fragile X syndrome, both through her own private practice and with the Fragile X Alliance Clinic.
Heightened and dysregulated sensory sensitivity is a very common for children and adults who have Fragile X syndrome, and can impact behaviours and daily living. In this webinar Bev will discuss how the sensory processing disorders can affect individuals and present sensory diets as a strategy to help give the person who has Fragile X syndrome the best chance to feel calm, alert and organised as a result of appropriate sensory input.
FUTURE PLANNING
Margaret Duncan
Duncan Legal
DISABILITY ESTATE PLANNING (Live Only)
Thursday 15th May, 7 – 8 pm AEST
Disability specific issues to consider when formulating Wills and Powers of Attorney that are to provide for a person with a disability. Covering: types of protective trusts, who to appoint as trustees, asset protection strategies, preservation of pensions/government benefits, superannuation & life insurance beneficiary nominations, and some accommodation options.
REGISTER HERE
SPECIAL DISABILITY TRUSTS (Live Only)
Thursday 29th May, 7 – 8 pm AEST
Discussion of the advantages and limitations of Special Disability Trusts in providing for the future for a person with disability.
REGISTER HERE
