The majority of our podcasts are audio recordings from our FX webinar series. Some are from workshops we have held, or small videos we’ve made featuring a specialist in Fragile X syndrome or a condition related to the Fragile X premutation.
The full range of our podcasts is available on Apple Podcast and Spotify. The video recordings which provide the source of the podcasts can be found on our youtube channel FX webinar recording playlist.
With Dr Mark Livingstone, IVF specialist, from a webinar recording in August 2022. Discussion of the Pre-Implantation Genetic Diagnosis (PGD) testing technique which can be used in an IVF process to differentiate embryos before transfer.
Fragile X Podcasts
With A/Prof Alison Archibald, from a webinar in August 2022. The essentials of the genetics of Fragile X, how the Fragile X gene alteration is passed on in families, and a clear overview of reproductive genetic carrier testing for Fragile X.
Fragile X Podcasts
With Dr Cohen MD, Medical Director of Fragile X Alliance Clinic, from webinar recording July 2022. Discussion for parents, carers and support teams on health considerations for adults with Fragile X syndrome, covering developmental, physical and emotional aspects of health.
Fragile X Podcasts
With Bev Kadish, occupational therapist, from webinar recording May 2022. In the context of the sensory processing disorders associated with Fragile X syndrome - discussion of practical implementation of a sensory diet, sensory integration therapy, and maintaining self-regulation for optimal daily living outcomes for an individual with Fragile X syndrome.
Fragile X Podcasts
With Bev Kadish, occupational therapist, from webinar recording May 2022. Discussion on how the sensory processing disorders which some people with Fragile X syndrome experience can impact behaviour and daily living. Bev addresses strategies to help give the person who has Fragile X the best chance to feel calm, alert and organised as a result of appropriate sensory input.
Fragile X Podcasts
With Dr Amanda Vincent MD PhD, from a webinar recording in April 2022. An estimated 25% of Fragile X premutation carriers may experience FXPOI. Discussion of health considerations and symptom management for women with FXPOI symptoms, and the risk factors associated with developing FXPOI.
Fragile X Podcasts
With Bev Sher, Speech and Language Pathologist. From a webinar recording March 2022. Bev discusses the importance of social stories as a tool to support communication and daily living for many individuals with Fragile X syndrome. Social stories can help reduce anxiety, assist with transitions, help with learning new skills, and in understanding behaviours.
Fragile X Podcasts
With Dr Marcia Braden PhD, licensed psychologist, from webinar recording February 2022. Girls and women who have Fragile X syndrome are affected differently than boys who have Fragile X. The strengths, challenges, and deficits which they often encounter can best be supported with specific supports and strategies.
Fragile X Podcasts
With Dr Marcia Braden PhD, licensed psychologist, from webinar recording, Nov 2021. Learn what’s behind the Anxiety which impacts daily living for so many. How is this anxiety different to everyday anxiety in the general population? What are the triggers, and the emotional and behavioural responses a person may have to this anxiety? What supports will be most helpful?
Fragile X Podcasts
With Dr Marcia Braden PhD, licensed psychologist, from workshop recording, Melbourne 2020. Comprehensive discussion of how neurobiological factors associated with Fragile X syndrome affect daily living and learning skills, and strategies for structuring the home and classroom environment to account for the cognitive profile of Fragile X syndrome.
Fragile X Podcasts
With Dr Marcia Braden PhD, licensed psychologist, from video recording March 2020. With a focus on males, in this video Dr Braden outlines how the neurobiology of Fragile X syndrome impacts behaviours, potential triggers for challenging behaviours, and accommodations to support behaviours.
Fragile X Podcasts
With Dr Marcia Braden PhD, licensed psychologist, from video recording March 2020. Dr Braden presents strategies for encouraging the independence of adult males, taking into account the neurobiology of Fragile X syndrome and the developmental delays that affect daily living.
Fragile X Podcasts
Your generous donation will help FXAA ensure people living with Fragile X are connected, included, understood and empowered. Specifically, your donation will help us maintain and deliver support and connections to the Fragile X community around Australia: 1. Counselling support 2. FXAA Helpline - available 5 days per week - 1300 394 636 3. Webinar program 4. Peer connection and referrals 5. Advocacy work – for example, our Fragile X Care | Adults & Ageing research study. This is the first Australian study on the support needs, health & wellbeing of adults with Fragile X syndrome as they age. All support is sincerely appreciated and helps us make a difference for the Fragile X community.
