Category Archives: Uncategorized

June newsletter – out now!

Our June newsletter is out today! Family stories, the latest on drug trials for Fragile X syndrome, Australian research studies seeking participants, Fragile X awareness month in July, fundraising, events, and more! Read online! Or download the pdf version here  … Continue reading

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End of Financial Year: Your donation will help us support the Fragile X community

YOUR DONATION will help give us the capacity to continue providing support to the Fragile X community and effectively raising awareness of Fragile X-associated disorders. Around 90,000 people in Australia, children and adults, are impacted by Fragile X in some way. … Continue reading

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Clinical trial now enrolling: CBD gel for children 3-17 (CONNECT-FX Study)

Enrolments open until 5 July 2019: The CONNECT-FX study is running in Australia, New Zealand and the US, to study an investigational drug in gel form called Zygel, manufactured by Zynerba Pharmaceuticals. The aim of the study is to determine … Continue reading

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Ten Things Teachers Need to Know About Fragile X

downloadable: Top Ten Things for Teachers to Know about FXS_from NFXF website_March 2019 Top Ten Things for Teachers to know about Fragile X Syndrome These ten things will help bring out the strengths of each child and minimize or improve some of … Continue reading

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Latest FX newsletter: March 2019

Our March 2019 newsletter includes: * Preview of our 30th birthday celebrations! *Tips for “back at school” resources for teachers who have children with Fragile X in their classroom * Update on our campaign to increase knowledge of Fragile X-associated … Continue reading

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Bridge to Beach fundraiser! Donations matched by Shaw and Partners

            The annual Bridge to Beach paddle race supports Fragile X Association of Australia. This  year Shaw and Partners will help us reach our fundraising target of   $10,000! Shaw and Partners is an investment and … Continue reading

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Annual Report 2017-2018

Each year our Annual Report is a great wrapup of the work we’ve been doing to increase awareness of Fragile X in the medical community, to provide support to individuals and families impacted by Fragile X, information about Fragile X-associated … Continue reading

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Fragile X Christmas cards 2018

New Christmas cards for 2018! Order by email or phone: support@fragilex.org.au OR 1300 394 636      

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New Board 2018-2019

Following the Annual General Meeting of 11 November 2018, we welcome the new Board for 2018-2019 and in particular welcome two new volunteer directors, Kate McKeand and Wayne Pointon. Prof W Ted Brown, President Prof Brown MD is the recently retired … Continue reading

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Our newsletter for October 2018

Our news and events for 2018, to the end of October. Covering the visit to Australia by Prof Randi Hagerman, a new FXTAS clinic in Melbourne, a clinical trial in Australia, fundraising and family stories.       FX Info_October … Continue reading

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