ABC RN Interview – Fragile X syndrome, with Dr Cynthia Roberts
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Health Considerations for Adults with Fragile X syndrome
With Dr Cohen MD, Medical Director of Fragile X Alliance Clinic, from webinar recording July 2022. Discussion for parents, carers and support teams on health considerations for adults with Fragile X syndrome, covering developmental, physical and emotional aspects of health.
Fragile X Podcasts
SENSORY PROCESSING DISORDERS AND FRAGILE X SYNDROME (FOR THERAPISTS)
With Bev Kadish, occupational therapist, from webinar recording May 2022. In the context of the sensory processing disorders associated with Fragile X syndrome - discussion of practical implementation of a sensory diet, sensory integration therapy, and maintaining self-regulation for optimal daily living outcomes for an individual with Fragile X syndrome.
Fragile X Podcasts
SENSORY PROCESSING AND FRAGILE X SYNDROME (FOR FAMILIES/CARERS)
With Bev Kadish, occupational therapist, from webinar recording May 2022. Discussion on how the sensory processing disorders which some people with Fragile X syndrome experience can impact behaviour and daily living. Bev addresses strategies to help give the person who has Fragile X the best chance to feel calm, alert and organised as a result of appropriate sensory input.
Fragile X Podcasts
Fragile X and Primary Ovarian Insufficiency (FXPOI) – What do I need to know
With Dr Amanda Vincent MD PhD, from a webinar recording in April 2022. An estimated 25% of Fragile X premutation carriers may experience FXPOI. Discussion of health considerations and symptom management for women with FXPOI symptoms, and the risk factors associated with developing FXPOI.
Fragile X Podcasts
Creating Social Stories
With Bev Sher, Speech and Language Pathologist. From a webinar recording March 2022. Bev discusses the importance of social stories as a tool to support communication and daily living for many individuals with Fragile X syndrome. Social stories can help reduce anxiety, assist with transitions, help with learning new skills, and in understanding behaviours.
Fragile X Podcasts
FEMALES AND FRAGILE X SYNDROME | UNDERSTANDING THE CHALLENGES
With Dr Marcia Braden PhD, licensed psychologist, from webinar recording February 2022. Girls and women who have Fragile X syndrome are affected differently than boys who have Fragile X. The strengths, challenges, and deficits which they often encounter can best be supported with specific supports and strategies.
Fragile X Podcasts
Annual Report 2020-2021
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Understanding Anxiety and Fragile X syndrome
With Dr Marcia Braden PhD, licensed psychologist, from webinar recording, Nov 2021. Learn what’s behind the Anxiety which impacts daily living for so many. How is this anxiety different to everyday anxiety in the general population? What are the triggers, and the emotional and behavioural responses a person may have to this anxiety? What supports will be most helpful?
Fragile X Podcasts
Read online – Margaret’s Story: The unfolding discovery of the Fragile X gene
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Join the International Fragile X Premutation Registry: Enrol online
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Back to School: Resources for teachers on the Fragile X learning style
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