What we do
Fragile X Association of Australia (FXAA) supporting the Fragile X community:
- Helpline 5 days per week
- Family support
- Counselling and referrals
- Information about Fragile X
- Educational workshops
We offer information and support to people with Fragile X, their families and carers.
We also provides information for organisations and individuals supporting people with Fragile X conditions.
We work to increase awareness and understanding of Fragile X disorders in the general community and amongst health and educational professionals.
Governance of Fragile X Association of Australia Inc (FXAA)
FXAA is incorporated under the Associations Incorporation Act 2009 NSW and regulated by the NSW Department of Fair Trading under the Act. FXAA reports to and complies with the Australian Charities and Not-for-profits Commission (ACNC).
FXAA’s registered constitution confers power to act nationally for the objects of directly aiding persons affected by Fragile X Syndrome, including full mutation and premutation, and of promoting the detection, relief, treatment and prevention of Fragile X Syndrome through any other means.
Membership of the Association is open to people affected by or associated with Fragile X Syndrome and members are entitled to attend and participate in general meetings of the Association. Members are not personally liable for the liabilities of the Association.
Under the Act and the Constitution, the Board of 8 voluntary members is elected by the Annual General Meeting with half the Board being elected each year for two year terms. The Board meets every two months and has power to manage the affairs of the Association. The Board has appointed an executive committee of the President, Treasurer and Secretary to meet monthly and to supervise the work of FXAA at all times.
The Association’s financial affairs are managed by the staff including the Executive Officer and by the executive committee and Treasurer. Financial reports are presented to Board meetings. The accounts are audited annually, presented to the AGM and a summary of financial affairs is filed with the NSW Department of Fair Trading, and the ACNC, and other bodies as required.
The Board has appointed a committee to provide independent oversight of the FXAA Endowment Fund which is managed under specific rules and audited annually.
The staff of FXAA are appointed by the Board through the executive committee and provide monthly reports through the Executive Officer.
Fragile X Association of Australia Inc
ABN: 18 655 2764 477 ARBN: 626 478 966
Suite 204, 20 Dale Street, Brookvale NSW 2100