What we do
The Fragile X Association of Australia provides specialised assessment clinics, information, support, counselling and workshops for people with Fragile X and their families. The Association can also provide information for organisations and individuals supporting people with Fragile X.
We work to increase awareness and understanding of Fragile X in general and especially in the medical and educational communities.
Governance of Fragile X Association of Australia Inc
The association is a national organisation incorporated under the Associations Incorporation Act 2009 NSW and regulated by the NSW Department of Fair Trading under the Act.
The registered Constitution of the Association confers power to act nationally for the objects of establishing multi-disciplinary clinics to directly aid persons with Fragile X Syndrome and of promoting the detection, relief, treatment and prevention of Fragile X Syndrome through any other means.
Membership of the Association is open to people affected by or associated with Fragile X Syndrome and members are entitled to attend and participate in general meetings of the Association. Members are not personally liable for the liabilities of the Association.
Under the Act and the Constitution, the Board of 8 voluntary members is elected by the Annual General Meeting with half the Board being elected each year for two year terms. The Board meets every two months and has power to manage the affairs of the Association. The Board has appointed an executive committee of the President, Treasurer and Secretary to meet monthly and to supervise the work of the Association at all times.
The Association’s financial affairs are managed by the staff including a financial manager and by the executive committee and Treasurer. Financial reports are presented to Board meetings. The accounts are audited annually, presented to the AGM and a summary of financial affairs is filed with the Department.
The Board has appointed a committee to act as an independent board for the Fragile X Endowment Fund which is managed under specific rules and audited annually.
The staff are appointed by the Board through the executive committee and provide monthly reports through the executive officer.
Last updated: 17 July 2014