Awareness Month Activities

July is Fragile X Awareness month and Fragile X families from all over Australia
have been taking part in various activities including our first ever
Virtual Awareness Walk. Here are some of our activities including a selection of media coverage from TV, radio and social media.

Awesome interview with Rachael Clements on Studio 10, Australia’s
version of ‘The View’ click the picture to see the YouTube clip

Studio 10 Rachael

Network 10, THE LOOP, click the picture below to view

The Loop

The Loop

COUCH TIME on channel ELEVEN, click picture to see the clip




Rescu website

Shout out on radio from Jonesy and Amanda they tweeted their picture wearing our ribbon
Jonesy and Amanda wearing ribbon

ABC Interview with Cynthia Roberts and Linda Mottram clip below



ABC Adelaide Sonya Feldhoff interview with professor Robert Richards clip below:

abc adelaide

30 second Community Service Announcement distributed through Community Broadcasting Association aired on several radio stations including Orange FM:

Virtual walk for Fragile X

virtual walk 2

Sandra Sully on Twitter

sandra sully

raffle ticket

Our raffle for a 2 day sail on Sean Langman’s Team Australia 60ft Trimaran raised $3,400!

Direct mailing
we contacted Ministers all over Australia and asked them to get behind our cause. Here are some of our pictures!


Hon. Jay Weatherill MP, Premier of SA wearing his ribbon on ABC news

Wil Hodgman

The Hon Will Hodgman MP, Premier of Tasmania

Mike Baird ribbon


Jay Weatherill ribbonDennis Napthine ribbonAndrew Powell ribbon

Sarah’s story in the Ballarat Courier
sarah story

2 page spread in Peninsula Living

Sample of our Awareness Posters, our members have posted them up in schools, libraries, Shopping Centres, Ministers windows and other places!

awareness poster hugh awareness poster

 Members Activities

Luciana Romanski helping her mum Michelle at their stand in the shopping Centre
where they sold treats and homemade goodies to fundraise and raise awareness

Luciana ribbon

Virtual Walk
launcestonBallarat walk