Support needs of fathers of children with FXS – Australian study

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INVITATION TO FATHERS OF CHILDREN WITH FRAGILE X SYNDROME *

If you are a father of a child or adult with Fragile X syndrome, we invite you to tell us about your experiences by participating in the project: 
‘The support needs of fathers of children with Fragile X syndrome’

The NSW Genetics of Learning Disability (GOLD) service and University of Sydney Master of Genetic Counselling program invites all fathers who are:
•   Over 18 years of age
•  Have at least one child (young or adult) with a Fragile X syndrome diagnosis
•  If the first diagnosis of FXS was made over 12 months ago
• You do not yourself have a Fragile X genetic result in the premutation or full mutation range
to participate in a telephone interview to explore your experiences surrounding your child/children being diagnosed with FXS and since the diagnosis.

If you decide to participate in the study, please read the participant information statement and sign and return the consent form (see pdf document below) or contact Rosie O’Shea who will send a recruitment pack.

Contact Rosie O’Shea via email at rosie.oshea@sydney.edu.au or 02 99264684, if you have any questions or would like a paper copy of the participant information statement and consent form sent to you.

FXAA FXS father study PIS+PCF 020517

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