Invitation from Fragile X Association to take part in a research project.
A research project into some common health issues associated with being a female carrier of Fragile X is underway now at Monash University in Melbourne, and the project team is seeking participants to undertake a 30-minute online survey.
The project is being run by Tatiana Palacios and Dr Claudine Kraan, under the supervision of Professor Kim Cornish, a former FXAA Board member. The results of the study are intended to help women and their families, as well as to inform clinical professionals on providing more personalised treatment options for women who carry the Fragile X gene.
Tatiana, Claudine and Kim have developed an online survey, which is open until August 2015.
We encourage members of the Association to consider participating in the study as it will help to shine more light on issues facing many female carriers of Fragile X.
If you have any questions about the purpose of the study, or the results, please don’t hesitate to contact the research team.
“We are currently seeking women between 18 and 55 years old with a small to medium expansion of the FMR1 gene (between 55 and 200 CGG repeats) to participate in a research study. Women with this gene alteration are sometimes called ‘carriers’ or ‘premutation carriers’.
This online questionnaire research project will look at some common health issues that can be strongly associated with being a carrier of fragile X.
This is an anonymous questionnaire and no identifying information will be collected. It can be completed in about 30 minutes.
To participate in the study, please complete the questionnaire at the following web address.
By participating in the study you can enter a competition to win a $50 Coles Myer gift voucher (a total of 2 available to be won).
If you would like more information about this study, please contact Tatiana Palacios on 0432 919 363 or via email at email@example.com