Webinar/Q&A Future Planning considerations, 23 April 2024
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Watch the action! On Sunday 18th February as close to 400 paddlers took on the 23rd annual Bridge to Beach paddle race across Sydney Harbour. This iconic race is one of the biggest on Australia’s paddling calendar, and delivers thrills and spills while supporting Fragile X Association of Australia in raising much-needed funds for our Family Support service.
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Children aged 3 to 22 years who are experiencing Fragile X syndrome-associated behavioural issues may be eligible to participate in a clinical trial in Australia. The RECONNECT study is seeking to evaluate the efficacy of a topical gel developed by Zynerba Pharmaceuticals in helping with the Fragile X-associated behaviours. The study remains open to participants through to the end of 2024.
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Our FX Webinar series 2024 commences shortly and sees the return of several regular presenters, including Kate Strohm and Dr Marcia Braden PhD. Over the coming weeks Kate Strohm will present two webinars on supporting siblings of children or adults with Fragile X syndrome. In April and May Dr Marcia Braden PhD will discuss the specific challenges Fragile X syndrome can present for females, and present a new discussion on differentiating Fragile X syndrome and autism spectrum disorder.
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It was an adrenaline-fuelled spectacle on Sydney Harbour on Sunday 18th February as close to 400 paddlers took on the 23rd annual Manly Wharf Bridge to Beach challenge. This iconic 11km race, one of the biggest on Australia’s paddling calendar, delivers thrills and spills while supporting Fragile X Association of Australia in raising much-needed funds for the Fragile X Family Support role!
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Concise (7-minute) version of our classic "explainer" about Fragile X syndrome, featuring Australian and international experts in field. Ideal introduction to Fragile X for parents, carers and everyone supporting a child with Fragile X syndrome.
Fragile X Podcasts
This resource remains our classic "explainer" about Fragile X syndrome, featuring Australian and international experts in field. Ideal introduction to Fragile X for parents, carers and everyone supporting a child with Fragile X syndrome.
Fragile X Podcasts
Fragile X syndrome has a well-researched and recognised learning style, involving strengths and challenges that stem from the neurobiology of this genetic condition. Understanding the Fragile X learning style, and making appropriate accommodations to a learning environment, are the keys to successful outcomes for children and adults. The resources here will provide the essentials for getting up to speed, and more comprehensive materials for a deeper dive on the Fragile X learning style so you can accommodate for the challenges and capitalise on the strengths of Fragile X syndrome.
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Beyond the sheer exhilaration of paddling across Sydney's beautiful Harbour, the Bridge to Beach paddle race is dedicated to supporting and raising funds for Fragile X Association of Australia, adding a meaningful purpose to this thrilling paddling experience. This year race sponsor Shaw and Partners has pledged to MATCH, $ for $, the first $5,000 raised, This incredible support will help us reach our fundraising target of $10,000. You can help is us reach our fundraising goal and activate the matched donation by Shaw and Partners by making a donation online
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Our knowledge bank on Fragile X is extensive! Ideal for early learning about Fragile X, or a refresh. Catch up now, before our FX Webinar Series kicks off again for 2024. We've hosted and recorded many workshops and webinars over the years, featuring leading international and local specialists in Fragile X syndrome and the Fragile X premutation. The video recordings of webinars and workshops are available on our youtube channel, and some of the recordings are podcasts on our channels on Spotify and Apple Podcasts.
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