Category Archives: Uncategorized

Bridge to Beach fundraiser! Donations matched by Shaw and Partners

            The annual Bridge to Beach paddle race supports Fragile X Association of Australia. This  year Shaw and Partners will help us reach our fundraising target of   $10,000! Shaw and Partners is an investment and … Continue reading

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Annual Report 2017-2018

Each year our Annual Report is a great wrapup of the work we’ve been doing to increase awareness of Fragile X in the medical community, to provide support to individuals and families impacted by Fragile X, information about Fragile X-associated … Continue reading

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Fragile X Christmas cards 2018

New Christmas cards for 2018! Order by email or phone: support@fragilex.org.au OR 1300 394 636      

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New Board 2018-2019

Following the Annual General Meeting of 11 November 2018, we welcome the new Board for 2018-2019 and in particular welcome two new volunteer directors, Kate McKeand and Wayne Pointon. Prof W Ted Brown, President Prof Brown MD is the recently retired … Continue reading

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Our newsletter for October 2018

Our news and events for 2018, to the end of October. Covering the visit to Australia by Prof Randi Hagerman, a new FXTAS clinic in Melbourne, a clinical trial in Australia, fundraising and family stories.       FX Info_October … Continue reading

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Clinical trial in Australia: boys & girls with Fragile X syndrome

From September / October 2018 Zynerba Pharmaceuticals is running a clinical trial in Australia in boys and girls with Fragile X syndrome, aged between 3 and 17.  The trial sites are in Melbourne, Brisbane and Sydney.  This a followup to … Continue reading

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FXTAS clinic in Melbourne

A Fragile X-Associated Tremor Ataxia Clinic has recently opened at AlfredHealth in Caulfield, Melbourne. The clinic offers help in the diagnosis and management of people affected with FXTAS, and also has a research focus. The clinic operates on a Friday … Continue reading

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Annual General Meeting 11 November

Notice of Annual General Meeting of Fragile X Association of Australia Inc DATE:                   Sunday 11 November 2018 TIME:                     2:00—3:00 pm PLACE:                Fragile X Association of Australia Suite 204, 20 Dale Street,  Brookvale   NSW  2100 Followed by Afternoon … Continue reading

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New videos: Q&A with Prof Randi Hagerman

In August and September 2018, we hosted a series of presentations by Professor Randi Hagerman, Medical Director of the MIND Institute of UC Davis, California. LECTURES:  Dr Hagerman’s lectures were videod and will be available on our youtube channel soon. Q&A … Continue reading

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Annual General Meeting and Call for Board nominations

Annual General Meeting 2018 Our members and friends are invited to our 2018 Annual General Meeting. Date:  Sunday 11 November 2018, 2:00-3:00pm Place:  Suite 204, 20 Dale Street, Brookvale NSW 2100 RSVP:   wendy@fragilex.org.au Members outside Sydney can join the meeting by … Continue reading

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