Category Archives: Uncategorized

Harry goes surfing!

My son has done the equivalent of me doing a few jumps out of a plane. He certainly coped better than I know I would. No tears, no screaming hysterically. I’m writing this now while the pride I’m feeling in … Continue reading

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Bookkeeper/Administration role, part-time

About this role. We’re looking for an experienced Bookkeeper/Administrative Assistant to join our small team and manage the organisation’s accounts and financial processes and to provide administrative and project support for our operations. The position reports to the Executive Officer, … Continue reading

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Surfboard fundraiser raffle winner!

The winner of the surfboard donated to Fragile X Association by Bede Durbidge, his wife Tarryn and Bede’s sponsors is Chanelle Avison from Queensland! Congratulations Chanelle! Here’s the board shortly after the winning ticket was drawn by Mrs Jean Hay, Northern … Continue reading

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New study on inadequacy of healthcare for people with intellectual disabilty

Fragile X Association of Australia (FXAA) is very disturbed by the results of the recent study by Professor Julian Trollor of the Department of Developmental Disability Neuropsychiatry (3DN)  UNSW on inequity in the health system for people with intellectual disability. Media … Continue reading

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Hear Dr Randi Hagerman’s webinar on health aspects for carriers of Fragile X

On Wednesday 1 February Dr Randi Hagerman, leader in the field of Fragile X, gave a webinar on health perspectives for carriers of the Fragile X premutation. Dr Hagerman spoke about how and why some carriers of Fragile X can have certain … Continue reading

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Ben’s Passion for Life Inspires

Ben Kalenjuk has won an Achievement Award 2016. Eugene Kalenjuk thinks he’s the luckiest Dad in the world! He and his wife Sharon are parents to three children – Ben, Emmalea and Gabriel. The oldest, Ben, was diagnosed with Fragile X … Continue reading

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Stuart’s Story – Transition to Community Living

Transition to Community Living Brings Many Rewards Stuart Iredale has won an Achievement Award 2016. Stuart Iredale is now 58 years old. He is affected by Fragile X and has another mutation on his 4Q chromosome – he has what they call … Continue reading

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December newsletter!

In our December newsletter: Achievement Award winners.  A wrapup of the festival of orange that is Fragile X awareness month!  Meet our new Board.  Member stories.  News of our awareness campaigns in the medical community.  The Fragile X premutation carrier … Continue reading

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Early menopause/primary ovarian insufficiency – when to consider Fragile X

When to consider Fragile X – Early menopause or primary ovarian insufficiency should trigger genetic testing Article published in Medical Observer December 2016/January 2017 edition.   Written by Prof Martin Delatycki, Medical Director of Victorian Clinical Genetics Services, with Jean Hailes … Continue reading

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Achievement Award – Rebecca

Rebecca Jansen is a winner of a Fragile X Association Achievement Award 2016! Inclusion and Participation Strengthen Rebecca’s Love of Bowling Like many 20 year olds, Rebecca Jansen loves sport. She loves the social interaction and feeling of inclusion that … Continue reading

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