Category Archives: Uncategorized

The Latest on Fragile X | Dr Randi Hagerman in Melbourne 27 August & Sydney 3 September

It’s a great pleasure to welcome Dr Randi Hagerman back to Australia!   Dr Hagerman was last here in 2015. Please join us to hear Dr Randi Hagerman on the Latest on Fragile X  –   in Melbourne at the Royal Children’s Hospital on … Continue reading

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Pre-conception carrier screening trial announced by Federal Government

One in 20 Australians carries at least one altered gene that could cause cystic fibrosis, SMA or Fragile X syndrome in their children. On 8 May 2018, the Federal Government announced a $500 million pledge to the Genomics Health Futures Mission, … Continue reading

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Prof W Ted Brown has joined our Board

The Board of directors of Fragile X Association is delighted to welcome Prof Wm Ted Brown, who has joined the Board. Prof Brown has been working in the fields of Fragile X syndrome and autism for over 35 years.  He … Continue reading

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New Videos! Dr Marcia Braden on Daily Living Skills and Supporting Learning

In November 2017, Dr Marcia Braden, eduational psychologist, was in Australia as a guest of Fragile X Association, to run some clinic assessments for children with Fragile X and present at two workshops.  The workshops, in Brisbane and Hobart, were … Continue reading

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Employable Me on ABC TV – commences 3 April 2018

‘It’s hard enough to find a job, let alone when you have a disability.’ Employable Me, a new series on ABC TV, produced by Northern Pictures, follows nine participants as their job searches unfold. From the fun-loving Marty, who just wants people … Continue reading

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Fragile X disorders – don’t miss them

Expansions in the FMR1 gene cause a family of disorders. Yet Fragile X-associated disorders are often under-recognised or misdiagnosed. What should GPs and other health professionals be looking out for? Fragile X-associated disorders: Don’t miss them,  published in the July 2017 … Continue reading

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Shaw and Partners Doubles Their Commitment to Match Donations

For the second year running, Shaw and Partners has generously committed to match, dollar for dollar, donations made to Fragile X Association as charity partners for the Manly Wharf Bridge to Beach 2018. Our fundraising target is $20,000 – to help fund the … Continue reading

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Back to school! Guides & tips on the FX learning style and supports

Back to school for 2018! Children with Fragile X syndrome have a unique learning style, and may face particular challenges in learning, and in the classroom. A range of resources will be helpful for teachers in the classroom and for … Continue reading

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Our Annual Report 2016-2017

Our Annual Report was tabled at the Annual General Meeting held on Sunday 26 November at the Fragile X Association of Australia office. Great overview of the year that was – increasing awareness of Fragile X-associated Disorders within the medical … Continue reading

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Latest Fragile X Newsletter Oct 2017

The October newsletter profiles the Fragile X Community Days in Brisbane and Hobart – which will feature experts Dr Marcia Braden, educational psychologist and special educator from the US, and Dr Jonathan Cohen from the Fragile X Alliance Clinics in Melbourne. … Continue reading

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