Author Archives: fragilex

Fragile X disorders – don’t miss them

Expansions in the FMR1 gene cause a family of disorders. Yet Fragile X-associated disorders are often under-recognised or misdiagnosed. What should GPs and other health professionals be looking out for? Fragile X-associated disorders: Don’t miss them,  published in the July 2017 … Continue reading

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Shaw and Partners Doubles Their Commitment to Match Donations

For the second year running, Shaw and Partners has generously committed to match, dollar for dollar, donations made to Fragile X Association as charity partners for the Manly Wharf Bridge to Beach 2018. Our fundraising target is $20,000 – to help fund the … Continue reading

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Back to school! Guides & tips on the FX learning style and supports

Back to school for 2018! Children with Fragile X syndrome have a unique learning style, and may face particular challenges in learning. A range of resources will be helpful for teachers in the class room and for parents and carers … Continue reading

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Our Annual Report 2016-2017

Our Annual Report was tabled at the Annual General Meeting held on Sunday 26 November at the Fragile X Association of Australia office. Great overview of the year that was – increasing awareness of Fragile X-associated Disorders within the medical … Continue reading

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Latest Fragile X Newsletter Oct 2017

The October newsletter profiles the Fragile X Community Days in Brisbane and Hobart – which will feature experts Dr Marcia Braden, educational psychologist and special educator from the US, and Dr Jonathan Cohen from the Fragile X Alliance Clinics in Melbourne. … Continue reading

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Annual General Meeting | Sunday 26th Nov 2pm

This year our Annual General Meeting will be held on Sunday 26th November at 2:00-3:00pm, followed by afternoon tea. RSVP:  Wednesday 22 November.   wendy@fragilex.org.au or call 1300 394 636          

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Brisbane: 1st Nov | FX Information Day

FX Community Day_Brisbane 1 Nov 2017_Flyer We are delighted to host a Fragile X Community Day in Brisbane on Wednesday 1st November.  This is a really unique opportunity to get together, and to hear from the latest from experts Dr Marcia … Continue reading

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Hobart: 3 November | FX Community Day

  We are delighted to host a Fragile X Community Day in Hobart, thanks to the support of Calvary Community Council. A unique opportunity to get together, and to hear from the latest from experts Dr Marcia Braden, educational psychologist … Continue reading

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Click here : to watch Mike training Our board member, Mike Tozer (aka #fastsuitguy) has a very busy 6 weeks ahead…. The Sydney City2Surf is the biggest fun run on the planet, so they say.   And Mike and Helen have a … Continue reading

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Study backs wider carrier screening for Fragile X syndrome

It is estimated that 1 in 250 women are carriers of the Fragile X premutation. These women may be at risk of having a child affected by Fragile X. Testing for Fragile X carrier status is currently available, but current … Continue reading

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