Author Archives: fragilex

Part-time role: Bookkeeper & administration support

Bookkeeper/Administration Support Role – Part-Time 1.         About this role Fragile X Association of Australia is a small not-for-profit organisation based on the northern beaches of Sydney. We’re looking for an experienced Bookkeeper to join our small team, to manage the … Continue reading

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Support needs of fathers of children with FXS – Australian study

      INVITATION TO FATHERS OF CHILDREN WITH FRAGILE X SYNDROME * If you are a father of a child or adult with Fragile X syndrome, we invite you to tell us about your experiences by participating in the … Continue reading

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Fragile X syndrome: from Medical Observer

This article, written by Dr Jonathan Cohen, Professor Sylvia Metcalfe, and Dr Alison Archibald provides an excellent overview of Fragile X syndrome and its associated disorders. Click here to open/read/download the article:  Fragile X syndrome Parts 1 and 2, from Medical Observer_2012 … Continue reading

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Home Among the Gum Trees: An American Family’s Amazing Australian Adventure

On one of our first confused and jet-lagged August mornings in Australia, I heard very loud chirps, hoots, and other unfamiliar noises coming from what I thought was our son’s ipad. I was about to tell him to turn down … Continue reading

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Newsletter – Focus on girls with Fragile X, Family Stories, Fundraisers, Family support, and more

Focus on girls with Fragile X, Family Stories, Fundraisers, Family support, and more….    our latest newsletter is a bumper edition! To read the newsletter: 1_ Read online on the issuu website. Clink the link below and then select the “full … Continue reading

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New clinical trials in Australia

New clinical trial in Australia – a skin gel for the treatment of symptoms of Fragile X syndrome in people aged 8-17 years old. 3 trial sites in Australia For further information: Melbourne: Fragile X Alliance clinic (Dr Jonathan Cohen), … Continue reading

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Harry goes surfing!

My son has done the equivalent of me doing a few jumps out of a plane. He certainly coped better than I know I would. No tears, no screaming hysterically. I’m writing this now while the pride I’m feeling in … Continue reading

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Accounts/Administration support role – part-time

About this role. We’re looking for an experienced Bookkeeper/Administrative Assistant to join our small team and manage the organisation’s accounts and financial processes and to provide administrative and project support for our operations.The position reports to the Executive Officer, with … Continue reading

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Surfboard fundraiser raffle winner!

The winner of the surfboard donated to Fragile X Association by Bede Durbidge, his wife Tarryn and Bede’s sponsors is Chanelle Avison from Queensland! Congratulations Chanelle! Here’s the board shortly after the winning ticket was drawn by Mrs Jean Hay, Northern … Continue reading

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New study on inadequacy of healthcare for people with intellectual disabilty

Fragile X Association of Australia (FXAA) is very disturbed by the results of the recent study by Professor Julian Trollor of the Department of Developmental Disability Neuropsychiatry (3DN)  UNSW on inequity in the health system for people with intellectual disability. Media … Continue reading

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